![]() Precision Cancer Survivorship Cohort: Developing a Cohort Using the OneFlorida+ Infrastructure In response to parents’ confusion about JIA treatment and fear around administering injections to their children, this poster shares research related to the best COVID-friendly strategies to break down or minimize these barriers. The study team randomized participants in the ADAPTABLE trial to three- versus six-month intervals between follow-up visits to determine the impact of each interval.įacilitating Peer-to-Peer Conversations Around Key Clinical Trial Recruitment Barriers in the Limit-JIA (Juvenile Idiopathic Arthritis) Trial Using Low-Fidelity Video Capture This poster explores the impact of the time interval between remote study visits on visit completion, medication adherence, and trial completion. Large pragmatic trials often use online approaches for follow-up. It also assesses how claims and clinical data complement each other to identify obesity and related diseases.ĭoes Interval Between Online Follow-Up Visits Affect Visit Completion, Medication Adherence, or Trial Completion Overall or in Age Subgroups? This poster describes a reusable environment that integrates hospital and electronic health records data in the PCORnet Common Data Model with statewide Medicare and Medicaid claims. PCORnet Clinical Data Research Networks capture healthcare use within their health systems, but may lack information on care received elsewhere in the community. This poster will present the development of a robust process for participant-driven research (PDR) in multiple sclerosis (MS) via the iConquerMS People-Powered Research Network, including features of the portal, engagement of people affected by MS, and more.Įnhancing PCORnet ® Clinical Research Network Data Completeness by Integrating Multistate Insurance Claims with Electronic Health Records This poster presentation will offer a glimpse into the perspectives gleaned from this community to inform current and future vaccine campaigns.ĭeveloping and Implementing a Multi-Stakeholder System for Enabling Patient-Driven Research in Multiple Sclerosis via the iConquerMS Research Network The PCORnet-supported HERO community has been an essential resource for understanding COVID-19, including vaccination trends, over the past two years. Vaccination for COVID-19: Perspectives from the Healthcare Worker Exposure Response and Outcomes (HERO) Community Over 2 years of the COVID-19 Pandemic 2020-2022 What’s coming next for PCORnet? This presentation offers a glimpse into the future of PCORnet’s Coordinating Center priorities for 2022 and beyond. PCORnet®, The National Patient-Centered Clinical Research Network: Priorities for the PCORnet Coordinating Center: 2022 and Beyond ![]() HERO Registry: Strategies and Resets to Diversify Engagement and Recruitment through Representative Stakeholders’ Involvement and Focused OutreachĪn exploration of the best strategies and resets to diversify engagement and recruitment through representative stakeholders’ involvement and focused outreach. The session will also describe how PCORI is developing internal continuous learning mechanisms to develop the role of a funder in an integrated LHS. This session will explore efforts to support LHS models and contemplate innovations in data and technology approaches, workforce development, and methodologies essential to achieving an integrated LHS vision. PCOR Infrastructure to Accelerate Progress Toward an Integrated Learning Health System (LHS) The session will focus on results related to three active PCORnet-leveraged projects funded by federal health agencies: the Accelerating COVID-19 Therapeutic Interventions and Vaccines-6 (ACTIV-6) trial, the Researching COVID to Enhance Recovery (RECOVER) trial, and a Centers for Disease Control and Prevention-funded COVID-19 surveillance project. Here are PCORnet-featured sessions you won’t want to miss: Name Registration is free, providing easy access to all the insights, data, and other useful information and experiences that will be shared. It highlights the progress of PCORI’s funding initiatives, including PCORnet, which help determine what care approaches work best, for whom, and under what circumstances. This virtual meeting will bring together researchers, clinicians, patients, and other stakeholders across the healthcare ecosystem. The 2022 PCORI Annual Meeting is fast approaching on October 26-27, and PCORnet®, the National Patient-Centered Clinical Research Network, will be featured prominently across the two-day event as PCORI’s premier health data infrastructure investment.
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